Emma Wheeler Emma's HLH

First post: Sep 26, 2017 Latest post: Nov 9, 2017
Click here to help to support Emma fight HLH

On Sept 17th Emma was admitted to a Bismarck hospital for complications of blindness, fatigue, weakness, enlarged, spleen and more.  She was admitted into the hospital that day and we haven't left yet.

On Sept 19th, Emma's conditions had worsened and the great pediatrician doctor in Bismarck said, Emma you have to go to Fargo cause you need more help than I can provide.  So we loaded into an ambulance and made the 200 mile trek East.

On Sept 21st Emma was diagnosed with a very rare and aggressive immune disease abbreviated HLH (HLH stands for hemophagocytic lymphohistiocytosis. It is a life-threatening condition that can be defined as either primary or secondary HLH.) https://www.youtube.com/watch?v=Vxoy5328MZc

HLH is treated like cancer using Chemotherapy, steroids and if genetic... a bone marrow transplant.

Emma currently has been in the hospital several days and her chemo treatments have started.  

Because we have so many caring friends and family members we wanted to create a site where you can follow Emma's journey.

We do not know where this journey will lead us, we know there will be months of chemo, months of missed school, months of some trials and tribulations, but thru it all, Our focus is Emma and we want to be with her every step of the way as support from family and friends will only strengthen her.

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

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