Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support, prayers and words of hope and encouragement. Thank you for visiting!
We thought we better update Emily's story since she received her kidney transplant on October 24, 2017. The year (2017) started (late January/Early February) with the discovery that Emily was in kidney failure due to a rare genetic condition that went undiagnosed by her pediatrician practice. After a 2 week stay in the hospital Emily started dialysis treatments in February of 2017. After her hospitalization Emily returned to school finished out her semester and spent the next 8.5 months on hemodialysis. Thankfully Emily only needed dialysis 2 times per week for most of that time period. Around October of 2017 Emily started doing dialysis 3 days a week. Emily had a number of people who were willing to be a "Living Kidney Donor" for her and the testing process got started for that very slowly in August of 2017.
In September/October of 2017 we received a call or two (don't remember how many) from Phoenix Children's Hospital about Emily's name coming up to receive a deceased donor kidney. That process is a little too confusing to relay here, but ultimately we were called on October 23 and told Emily was the second person in line for one deceased donor kidney that day and the third person in line for yet another deceased donor kidney that day. Well we didn't hear anything on October 23, so we called early in the morning on the 24th and were told that the kidneys went to other kids. Emily went to school that day and then we got called once more by PCH telling us that Emily was again the second in line for a deceased donor kidney that day. It wasn't more than 5-10 minutes later that another call came in and we were told Emily was a match for the deceased donor kidney and that we needed to get to the hospital ASAP for surgery. Emily spent 7 days in the hospital after her kidney transplant and has been re-hospitalized once for a couple of days post surgery. Overall Emily is doing well and facing typical challenges that come post kidney transplant surgery. Thankfully she is down to only needing labs once a week and one visit with the kidney doctor per week. As you will see in our posts Emily is still in need of prayer and still faces a number of challenges post transplant, but her health is moving in a good direction and praise God she no longer needs dialysis! Thank you for visiting her site and we appreciate your continued prayers.