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Nov 4, 2017
Emily Kate Pierce was diagnosed in April 2005 with Metachromatic Leukodystrophy (MLD), caused by a lack of an enzyme called Arylsulfatase-A, (ARSA). Without this enzyme, sulfatides are NOT broken down but build-up causing demyelination. This leads to loss of motor function, paralysis, blindness, and seizures. There currently is no cure. She has already exceeded the average life expectancy for MLD. Emily is a light for everyone who crosses her path. Come in to hear her story...