Join CaringBridge during this most important time of the year. Your support means that we can continue to provide free, secure websites all year long.
Emily Kate Pierce was diagnosed in April 2005 with Metachromatic Leukodystrophy (MLD), caused by a lack of an enzyme called Arylsulfatase-A, (ARSA). Without this enzyme, sulfatides are NOT broken down but build-up causing demyelination. This leads to loss of motor function, paralysis, blindness, and seizures. There currently is no cure. She has already exceeded the average life expectancy for MLD. Emily is a light for everyone who crosses her path. Come in to hear her story...