Emily Pierce Emily Pierce

First post: Nov 10, 2005 Latest post: Sep 27, 2019
Emily Kate Pierce was diagnosed in April 2005 with Metachromatic Leukodystrophy (MLD), caused by a lack of an enzyme called Arylsulfatase-A, (ARSA). Without this enzyme, sulfatides are NOT broken down but build-up causing demyelination. This leads to loss of motor function, paralysis, blindness, and seizures.  There currently is no cure.  She has already exceeded the average life expectancy for MLD.   Emily is a light for everyone who crosses her path.  Come in to hear her story...

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