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Mar 27, 2017 Latest post:
Jul 31, 2017
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your prayers, support and words of hope and encouragement. Thank you for visiting.
At only 26 weeks, weighing ONE pound and seven ounces Emily Kay Browning entered this world on May 28, 2012. During her NICU stay she survived a grade III AND a grade IV intraventricular hemorrhage (IVH/brain bleed/stroke), NEC (necrotizing enterocolitis) and all the other things that come with being a micro preemie.
As a result of this Emily has CP (cerebral palsy) on her right side and just shy of her 2nd birthday had her first seizure. Thus resulting in being diagnosed with epilepsy just after her 2nd birthday.
On February 29, 2016 Emily had her first surgery for G.R.I.D/resection surgery. On March 3rd and 5th she went back to the OR with complications of leaking CSF (cerebrospinal fluid). On March 9th she began leaking CSF again so the grids and electrodes had to be removed. This was done along with a small resection since she did not have a seizure during the time the grids and electrodes were in place and no "mapping" was captured.
Emily did have a seizure but it was within the 10 days post op that is considered to be surgery related. She did very well with the resection and we came home the day after her external ventricular drain was removed.
Her healing process was amazing! She did so well that some of her inpatient hospital monitoring stays were shorter than typical protocol and the time between out patient visits was lengthen more than once.
On March 15, 2017 one year and one day from her last seizure Emily had an extremely lengthy seizure that resulted in some paralysis on her already weaken CP side and put her at a higher risk for having more seizures.