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When Emmy was born on October 5, 2020, she appeared to be a normal baby. We brought her home from the hospital, introduced her to her big brother and select family.
The next day, we got a call that her newborn screen (that is performed on all babies at birth) had come back abnormal for SCID or Severe Combined Immune Deficiency. Basically she did not have many T cells, leaving her without an immune system.
We were immediately admitted to the hospital to keep her from getting sick.
From what we know so far, doctors believe she will need a bone marrow transplant at around 3 months old to give her the immune system she desperately needs to save her life. We plan to get her treatment out of state in Cincinnati, Ohio.