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Nov 3, 2020 Latest post:
Jul 30, 2021
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
When Emmy was born on October 5, 2020, she appeared to be a normal baby. We brought her home from the hospital, introduced her to her big brother and select family.
The next day, we got a call that her newborn screen (that is performed on all babies at birth) had come back abnormal for SCID or Severe Combined Immune Deficiency. Basically she did not have many T cells, leaving her without an immune system.
We were immediately admitted to the hospital to keep her from getting sick.
From what we know so far, doctors believe she will need a bone marrow transplant at around 3 months old to give her the immune system she desperately needs to save her life. We plan to get her treatment out of state in Cincinnati, Ohio.