Ella Brown #ellastrong

First post: 3/23/2017 Latest post: 5/1/2017
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Ella was born on 1/11/17 at 5:56pm by emergency c-section. She was born with a rash, an enlarged liver and spleen and other complications requiring frequent blood products. On 1/26/17 she was transferred to Boston Children's Hospital with a diagnosis of HLH. After a never-ending string of tests and weeks of treatment, including chemotherapy, it was discovered the Ella has an extremely rare genetic mutation on a gene called NLRC-4. See the journal entry updates for more information!

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