Sep 18, 2018 Latest post:
Oct 19, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place on how Elizabeth is doing. We appreciate your support and words of hope and encouragement. Craig (her partner) and I (her step mom) will be updating this website as changes occur.
Here is an overview of how we got to this point since many of you already know the story to this point. Due to renal failure and her type 1 diabetes , Elizabeth went on the list for a PK transplant ( pancreas/kidney) last October. Since then she has had a number of complications which have prevented the transplant. The latest is a sore on her right toe which is not healing well due to the neuropathy in her legs. They cannot do the transplant, until her toe is fully healed. After surgery on the veins of her legs, two weeks of PT in a rehab center, two days in the regular part of the hospital due to problems stabilizing her diabetes, Elizabeth came home last night. She was so happy to be home with family and dogs.
Unfortunately, Elizabeth forgot she cannot walk (she has extreme pain in her legs because of neuropathy ), she tried to get up during the night and fell. The good news is she did not break anything. The bad news is that she is bruised and hurting more.
We know now that it would be very difficult for us to take care of her at home without help. Currently, we are sitting at Barnes Hospital waiting for her to be admitted tonight. Tomorrow, with the help of a case worker here at the hospital, we hope to explore our options of how best to get treatment and care for Elizabeth.