So pretty much everyone I know, knows about my autoimmune disease called mixed connective tissue disease. It is an overlap disease of lupus, RA, Polymyositis and scleroderma. I get the joy of having parts of every disease. So far it has started to destroy my lungs with interstital lung disease, Addison's disease ( my adrenals don't work at all without steroids), Gastroparesis, constant joint and muscle pain and extreme exhaustion. The exhaustion is so bad that it is undescribable. Most recently I started chemo with a drug called rituxan which takes 6-8 weeks to take effect. This drug is kinda a last ditch effort on stopping this disease from destroying more organs. Recently I have been vomiting badly and my body is swelling up. I'm having heart and blood pressure issues. Doc says if I were to ever stop Prednisone for the rest of my life, I will die.
My husband has been staying up late at night to work when he has to take care of me or the kids or both some days. He took our vows very seriously and has stuck by me no matter what. However due to this disease, constant doctors appointments, and chemo it has taken a financial toll on us. Although not extremely bad yet, we don't want it to get to that point. If you just want to stay updated or want to donate, either way I appreciate you caring about me and my family. Thanks for reading