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Jan 9, 2018 Latest post:
Mar 19, 2018
I was diagnosed with myelofibrosis, a condition in which the bone marrow becomes progressively scarred until a person cannot make enough blood cells, in 2/2013. Initially, I was in the early stages and was able to just be monitored regularly without intervention. Over the last several months, the disease has progressed to the point where I developed significant fatigue and worsening scarring in the bone marrow. The only potential cure for myleofibrosis is a bone marrow transplant, and I am fortunate enough to have a full sibling match with my brother Scott. In consultation with my medical team at Duke, we have decided to pursue bone marrow transplant. I will get preparatory radiation the week of 1/9 to shrink my large spleen and be admitted for chemotherapy on 1/15. The planned transplant date is 1/23, and Mike or I will post regularly to let you all know how it is going. Thank you so much for all of your support! We are extremely grateful to our entire community, near and far.