First post:
Nov 22, 2017 Latest post:
Apr 26, 2019
Hi everyone, I started this site to help us all stay in touch during this journey. Thank you for checkin' in and stayin' in touch and leaving a comment if you wish. We need your support and good thoughts on this journey.
Briefly, this is what happened: Oct 10 I work up with a pain in my side, I had an ultra sound, they found masses in my liver; they thought were metastatic disease. Since then I have had test after diagnostic test looking for the primary tumor, which we have been unable to find thus far. Reveals that most of my body is healthy, yay! LOL, let us appreciate the irony of these findings.
The diagnosis I have is intrahepatic cholangiocarcinoma. Surgery is the only cure.
We travel to Mayo clinic Dec 4, Consult with the top doc there who has made his life's work around this disease to see if I am surgical candidate. Dec 6 is surgery day if I am deemed a candidate. UPDATE: As of Nov 22, no longer a surgery candidate.
We will keep updates coming as we can, read my journals to see the rest of the story. We will be updating this site as often as we can. Telling this story over and over and over again is not what I need to have be my meme. We have alternate modes of communication given the following restraints:
COMMUNICATIONS: we love to hear from all of you...
Home address ( No constraints, we LOVE to get real mail and I love writing note in return): Eileen Reilich, Peter Lesser 4925 Keating Road NW, Olympia, 98502. In person visits will be CHEMO-WBC timed.
Home phone: constraint ( we don't talk about this shit at night before bed) constraint; Eileen does not often answer the landline, recall among her demerits is loss of hearing before this other crap took hold so phone conversations are difficult--BONUS you can text us at the landline, that works well and gets us BOTH at the same time. Go Xfinity!
Eileen cell ( see constraints about phone calls above): And, TEXTING is BEST because I can READ IT and not have to guess at every other word.
Peter's cell: constraint: Peter is my advocate and angel so please text or call and offer him something to do/ or a loving feeling to send.... and let's not wear him out
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