Welcome to our CaringBridge website. Eden is a 6 yr old with spina bifida (thoracic myelomeningocele), kyphoscoliosis, neurogenic bowel and bladder, multiple contractures throughout her lower extremities, and osteopenia of her lower extremities. She has multiple neurological issues including a syrinx, chiari type 2 malformation, and macrocephaly. She is paralyzed from her mid trunk on down. Eden has two rib to pelvis VEPTR rods that require surgery every 6 months. We are using CaringBridge to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.