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10/26/2016 Latest post:
Thank you for visiting Eden's page.
Eden was recently diagnosed with 2 very rare forms of ovarian cancer. We will use this site to keep our friends and family informed about Eden's progress as we pursue treatment. We welcome your supportive comments. We know you will be thinking of Eden and we appreciate your positive thoughts and prayers.
Here is the story so far: - Mid-Sept, Eden experienced some bloating in her abdomen. We saw our family practice doctor within a few days (note: do not ignore things that seem abnormal!). - Dr was able to palpate a mass in her pelvis the size of a 20-week pregnancy. - Ultra sound the following day revealed a 16 cm tumor with suspicious characteristics. - We consulted with a gynocologist and were immediately referred to a gynocologic oncologist who performed an open surgical procedure the following week. - Pathology was ultimately performed at Johns Hopkins which revealed 2 types of very rare malignant cells: Sertoli-Leydig cell tumor and embryonal rhabdomyosarcoma. - Oct 10th and 11th, we consulted with experts at MD Anderson in Houston, TX. We also had a CT scan performed with was read as clear. - MD Anderson held a tumor conference on Oct 13th where they presented Eden's case in and effort to provide a recommended treatment protocol. - We met with a pediatric oncologist at Children's Hospital on Oct 13th. Eden will be receiving chemo treatment at Children's within the next week. We are not sure yet what the chemo treatment will be or how long it will last. - Each of the 2 malignancies have very different treatments. We and the doctors are currently trying to determine which cells to treat first. - Eden recovered well from the surgery. She is a sophomore at TJ. We are pursuing her options for finishing the school year. Visits from her friends are welcome and greatly appreciated. - Until we know what the treatment plan will be and what our schedule will be day-to-day and week-to-week, we don't know what help we will need. Please check this website for more details.