Feb 15, 2021 Latest post:
Mar 19, 2021
Welcome! This website is for people to keep track of Drewby’s surgery since we won’t be able to send out individual texts. We will do our best to keep this as updated as possible! We appreciate your support and words of hope and encouragement. Thank you for visiting. Please keep Drew in your daily prayers!! ~ Love, Josh and Gabby.
Drewby’s Heart Story:
Drew was born with a vascular ring consisting of a right-sided aortic arch with mirror image branching and ligamentum ateriosum. Her aortic arch branches off to the right, instead of the left (as is normal), and then comes back around and loops around her trachea and esophagus creating one vascular ring. The other vascular ring is caused by the ligamentum arteriosum which is a remnant of a blood vessel that exists normally in the fetus; it runs between the aorta and the pulmonary artery, and in doing so completes the ring and also constricts the trachea and esophagus.
When we found out about this, we knew that Drew was going to have to have surgery between 9-12 months to fix her vascular rings, but that up until then she would be totally healthy and fine! Drew has been very healthy, but when we started introducing solids, Drew started to choke, which is one of the side effects of a constricted trachea. The Dr ordered a CT a few months early because of the choking and it showed some concerning constriction, so they wanted to schedule surgery sooner. So here we are! Enjoy our journey.