DJ Hill #DJfightlikeaHAWK SUPERpanMAN

First post: Mar 24, 2022 Latest post: Sep 9, 2022
Welcome to our SUPERpanMAN’s CaringBridge website. We are using it to update DJ’s foundation of supporters and bring awareness to his extremely rare diagnosis. We appreciate your support and words of hope and encouragement. Thank you for visiting.

                                    SUPERpanMAN’s STORY

        On March 3rd, 2022 just three days after celebrating his tenth birthday, Dreydon came home with a tummy ache.  The next day his mom decided to take him into UW Hospital ER thinking he was just really dehydrated. Once the lab results came back, he was admitted to the American Family Children’s Hospital Immediately. After a series of tests, X-rays, and scans it was determined that DJ’s liver was showing abnormal, and his kidneys were in complete renal failure, and the toxins buildt up in his blood were such at dangerous levels he was rushed into emergency surgery to put in a port for dialysis to be started the next day, as well as collect a biopsy of his kidney. They also seen that the inflammation markers throughout the inside of his little body was at unseen levels. The pediatric specialists, residents, staff and even specialists over at the main hospital,  worked diligently to find the cause for all this and why it happened so quickly.    
After six days DJ’s parents were given his offical diagnosis’s, and it changed their lives in what felt like overnight. They were told their perfect and healthy son would be needing a kidney transplant within the next year due to the amount of damage seen on the biopsy. Then they were given his offical diagnosis as to why it happened and it was one no parent wants to hear. DJ was diagnosed with Polyarteritis Nodosa aka PAN. This was the cause of his acute kidney injury/kidney failure, liver abnormalities, hypertension, hemoglobin issues, and abdominal pain. He is now battling multiple different issues due to his kidneys not functioning.  PAN is a RARE autoimmune disease that effects all the medium and small blood vessels throughout the body and can cut off blood flow and oxygen to vital organs when flared. There is currently no cure for PAN and there is not an exact statistic on average life expectancy for individuals with polyarteritis nodosa, especially in children, as it’s so rare only 0.7 or 1 out of every million children worldwide are diagnosed with it.  Most PAN patients are men and diagnosed between age 45-60. Most all PAN patients need countless procedures throughout their life, including a minimum of one transplant and it takes years for some to get into remission. DJ and his family are in the beginning this fight. The goal is to find more information and cases like his, get the PAN into remission!
We appreciate you following our story and being apart of the foundation of love and light being built around DJ and his fight.

With all our love,

SUPERpanMAN’s Family