Imagine you are a healthy young person, feelinginvincible, and having all of the energy in the world and then hitting a brickwall. One day you start feeling like something is going wrong so you make atrip to the doctor only to find out that you have an incurable disease. Whichmakes you go from the vibrant, excited, crazy person able to do normal thingslike go shopping, cooking, cleaning, work and having a social life; to someonethat gets exhausted walking up the stairs, being in constant pain from theswelling in your joints, having to take naps during the day or feeling isolatedand left out of family events due to a lack of energy.
You are left feeling isolated, like NO one in the worldunderstands what you are going thru, and you get comments like, “Oh, stop.. youare just lazy.” OR, “If you get up, youwill feel better”, OR my ALLTIME favorite, “ Whats wrong with you, you don’tlook sick”. You expend ALL your energytrying to hide it, trying to make EVERYTHING positive, because you know thatonce things are go downhill, they start to spiral out of control FAST. Not to mention the foods that I have toavoid. There is a LONG list. This are things I have to get used to; andeven after 9 years, it is sometimes still a struggle, and often very fustratingespecially when I cant do things that I did before.