Welcome to my CaringBridge site. I’ve created this site so folks who are interested can get updates about what my heart and I are up to. It’s been a long journey, filled with so much support, love, and caring from you. I appreciate you so much!
How this all started In 2003, I had viral pericarditis, which affected my heart's ability to function well. I got through that and ended up with an ejection fraction of about 50%, which was borderline low, but didn't really affect my quality of life.
Then, in April of 2013 I ended up back in the ER with chest pains. Turns out it was ideopathic (we don't know why it happened) cardiomyopathy and my ejection fraction was back down to about 25% again.
After that I worked with my cardio team, trying various meds to decrease the stress on my heart and allow it to heal, but my heart’s efficiency just wouldn’t budge. In September of 2014, after I passed out (on stage! I guess I wanted to be sure it was a memorable show... ;-) ), we decided it was time to install a bi-ventricular pacing device with ICD, (implantable cardioverter defibrillator) with the hope that it would improve my heart function. We chose the device with an ICD because my low heart function elevated my risk of v-fib (ventricular fibrillation, a rapid, life-threatening heart rhythm starting in the bottom chambers of the heart.
Well, I am extremely happy we did that! It didn’t end up improving my heart function, but in 2016 it did save my life!