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Desirae Desmond's Journey
Jul 9, 2016 Latest post:
Oct 12, 2016
Desirae was diagnosed in 2014 with Fanconi Anemia.. A rare blood disorder that doesn't have a CURE!! She is going in for a bone marrow transplant this month.. She is in severe bone marrow failure.. This will help her but will not cure the Fanconi Anemia. She is the most bravest 9 yr old I know!!! Please help send positive thoughts and prayers as she goes through the hardest thing in her tiny life! We all love her very much, and her twin brother Jake is her hero!! He will be donating his marrow to her on July 29th.. And the "twin bond" will be stronger then ever!!! Our entire family would like to express our deepest gratitude for all of your prayers, love and support! We can't get through this without the love and help and guidance of you!!! Xoxox to all!!!