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Jan 22, 2018 Latest post:
Mar 13, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
I was diagnosed with Mylodisplastic syndrome (MDS) in February of 2015. I did 15 rounds of chemotherapy but it stopped working so I am now on a different drug as of Monday Dec. 11, 2017, the doctor gives it a 20% chance of working. I am also waiting to get into a experimental study at the Mayo Clinic, but have not heard any thing from them as yet. At a test at Mayo it showed that blasts (whatever that is) was at 13, at 20 it turns into Leukemia which would mean only a short time until death. My doctor give me a ball park of about 14 months from now until I check out for good. I do not feel sorry for myself but look at it as knowing how one is to die, so I can do it peacefully and hopefully on my own terms. My doctor said that it is harder on my family then on me. For that I am sorry.