Baby Jake, Hilary Jane & Linda Fay visiting me on Sunday 8/6! We were having lots of FUN!!

Daphne Dee Danzy Dee's Winning Against AML

First post: Aug 8, 2017 Latest post: Aug 22, 2017

Here I go again Kinda! I won the war against Anal Cancer (diagnosed 11/16/2005)! I was Stage IIIB with that aggressive cancer, I was pregnant but our son passed away 12/7/2005, had 8 weeks of radiation, some rounds of chemotherapy and NEVER returned to "healthy".  It left me disabled.
                                                                 NOW ~ Officially DIAGNOSED With ACUTE MYELOID LEUKEMIA on 7/26/2017!!!
   My AML has the genetic mutation FLT3 which makes it more difficult to battle.  I told everyone immediately that any "Googling" or such they did would be kept amongst them. I told my Oncologists and Hematologists that I did not want survival rates, percentages, ratios, etc... The Oncology team made it clear that I just got in just on time or I probably would not have seen my next Birthday ~August 23rd!!!
   Two months or so prior I had just started feeling "blah" and could not get rid of it. I was always so tired and never could get anything done.  I had the craziest thing happen around June 22nd, a fly flew into my right ear and to get it out I immediately sprayed hydrogen peroxide in my ear.  Bug parts came out and I thought "Ok".  A week later the ear was hurting even though I had been cleaning it with warm soapy water.  The Doctor said my right ear was squeaky clean, but bruised up badly, irritated.  The bruising did not make any sense at all because all I had not dug into the ear!  I put the prescribed drops in it for 10 days during this time puss actually drained out of my ear.
    By 7/12 I was feeling just awful, very tired, dizzy, nauseated all the time, drainage down the back of my throat, coughing a lot so I saw a Doctor.  He said I definitely had Bronchitis and was starting in on "walking pneumonia" so he prescribed an antibiotic and instructed me to follow up with my PCP.  I also pointed out to him some mystery bruises on my inner thighs. 
   I made an appointment with my PCP for 7/25 and while waiting had to get his advice about my Ileostomy. My Ileostomy had necrotic areas, swelling, bleeding, and was becoming painful so my PCP had me make an appointment with a surgeon to assess what was wrong there.  During the wait for my appointment I started to get a lot of mystery bruises on my back, then on my belly some on my thighs.  JD scratched my back which gave me petechiae and I noticed it in other areas. My 1st nose bleed woke me up by running down my throat and choking me. I had a constant nasal "stream" running down the back of my throat that would choke me.  I was so tired, taking a shower made my heart just pound hard in my chest.  The dizziness was insane, I fell a couple of times and my ears would feel like they needed pop.  I had convinced myself that I was probably iron deficient due to the bruises and my PCP would find it quickly.  JD kept wanting me to go to the Emergency but I told him it was going to be something silly I could wait for my appointment.
   The day of my appointment was horrid...I could barely manage sitting in the car for the ride to the Doctor's office.  I truly felt very sick. I just told JD that I would be glad to see our Doctor so he could tell me which vitamin I was deficient. My Doctor listened to what all had been going, did a physical exam and ordered some labs from blood. He came back & told me that my White Blood Cell Count was 59, 825!! He said that he did not believe I had an infection somewhere raising it that much plus there were a few other items off in my labs.  He instructed me to go straight to Sioux Falls because he had referred me to a Specialist and they would be calling my cell soon.  JD & I followed his instructions and had only been at my Son's home for a few minutes when my ringer went off. I was instructed to go to the Emergency room immediately, something about being very close to a point that my brain could hemorrhage. Needless to say when I arrived at the Emergency Department more bloodwork & other labs were done. I was admitted to ICU the evening of 7/25/17.  I have not left the hospital since!! I will though!! I will get this AML in remission!! I will get the Bone Marrow Transplant I need! I WILL WIN AGAINST THIS ACUTE MYELOID LEUKEMIA!! I am a warrior!! I am a Queen!

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