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12/22/2016 Latest post:
Hi friends and family! Welcome to my CaringBridge site. Steve and I created it to keep you updated. We appreciate your support and words of hope and encouragement during this time when it matters most.
Here’s the scoop…when something gets in the way of your daily swim or walk – check it out. While shortness of breath might mean just about anything (I’m thinking like the first time I saw Steve) in my case it meant something more serious (well, meeting Steve was serious, too – 35 years ago!). And here begins yet another journey in my life.
Most of you know that I have a very Rare Autoimmune Disease called Cardiac Sarcoidosis. My autoimmune system is attacking my heart (wish it was attacking my cellulite!). My heart efficiency is less than 10%. Naturally, we were blindsided by this – on May 6, 2016, I started with shortness of breath, atrial fibrillation, and passing out. Luckily JT (my son) called the paramedics, who used heart paddles on me (PAINFUL), and took me to Boca Raton Regional Hospital. After running what I thought at the time was every test in the book (NOT), the Cardiac Electrophysiologist implanted a heart defibrillator. Next was trips to Cleveland Clinic and Emory University for second opinions. Three months later we received some tough news, my Heart Failure Doctor at Emory diagnosed the Cardiac Sarcoidosis. He referred me to his associate at the Advanced Heart Failure Center at Tampa General Hospital for an evaluation for a potential heart transplant. After meeting the transplant team and another grueling week of testing, I was added to the heart transplant recipient list.
Please forgive the mass email but we are pretty drained and not sure we will be able to individually contact all the family and friends we are blessed to have in our life. I would love to hear from you! Please feel free to contact me at this site.
Thank you for your prayers, positive energy and words of encouragement. We wish you were all in one room so we could hug you all at once, but will have to settle for hugs across the internet for now. Once I get my new “ticker”, we will update you through CaringBridge.