On Sept 1st 2016 I went to the doctor for some severe shoulder pain I had been experiencing for a couple of months. The doctor ordered an MRI to determine what I had injured so we could address the pain and take care of the problem. Fast forward to Sept 13th 2016, went in for my MRI and shortly after I got home from the clinic, radiology called and asked me to return the next morning to have a second MRI with contrast. The next morning I went in for the second MRI and was told to meet with the Orthopedic Surgeon that afternoon. My husband (Ron) and my girlfriend Joette went to this appt with me. I was a little concerned that they were working me in so fast and didn't think I should be alone. Good thing I listen to my stomach because within 5 minutes of sitting down with the doctor I was informed that there was no injury and that the pain I was experiencing was Metastatic Cancer. He used words like "curious" and "interesting" and confirmed he had never seen this before. The decision was made at that time to take me off work indefinitely and begin testing to find the primary source of the Cancer. This where the story gets interesting. On the evening of Sept 15th 2016 my family doctor contacted me by phone and Ron and I spoke with him for about 15-20 minutes. He confirmed the diagnosis, and followed that up with "yours is a unique situation but not in a good way" this tore at the fabric of Ron and my emotions, not only didn't we have any answers but now we are being told it is rare and that can't be good. I have made the mistake daily of Google and trying to tie this to something curable, but with so many missing pieces I am finding that I am driving myself crazy. So I decided to open this website to track what has happened and what will happen in the future. I will also enable me to pass information along to people that care for me and my family without having to constantly repeat information and lose track of things. I have to tell you, repeating this information over and over is just a difficult reminder of what is going on and I feel as though I can't get away from it. Almost as though it is defining me. I will update this website as often as possible as well as a couple of my family members will do the same. I think it will be a good coping tool. Thank you in advance for caring and visiting. Update: On Oct 19th 2016 Ron and I were told I have poorly differentiated adenocarcinoma with no primary. This is a fast growing aggressive cancer that spreads throughout the body very fast. There is currently no known treatment, however, the doctors are still going to start chemo to see if they can find one that works. I am going to continue to fight this, even though they gave me 1-2 yrs to live, I am going to prove them wrong! I am looking into remedies all over the place. I will do whatever is necessary to be here as long as possible for my family and me. Cross your fingers for me, please be kind to one another. And most of all love your families. :) thank you for visiting.
So now I have come to a different cross roads in my life. This is 3 months after diagnosis in September. I have been told now the cancer is much more aggressive then they originally thought. My timeline has shrunk considerabley. It is now weeks to months. I will continue to treat as long as I feel good most of the time. Once the treatment is proven to be no longer working that too will stop. I will not live in misare for the remainder of my life. Just remember there is nothing more you should love in your life then your family and friends that show you matter to them. Don't waste your time on people who wont waste their time on you. Family or not makes no difference. Whatever decision I make please be supportive. I will continue to update this add often as possible. For now I am gonna get out and enjoy myself cuz I feel good today. Have a great day!