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David kicks Lymphoma
10/9/2017 Latest post:
Welcome to our CaringBridge website. We are using it to keep David's many family and friends updated in one place.
David first became ill on July 22, 2017 while traveling to Colorado with our son's Boy Scout Troop. After an urgent care visit and two ER visits, David was transferred by ambulance to a larger hospital in Colorado Springs where he was diagnosed with viral pericarditis. After a few days he was discharged and we headed back home thinking that we were going to put this illness behind us. Instead, David continued to feel badly. He had stomach pain, nausea and vomiting which we were told was related to the cardiac meds he was prescribed. As his vomiting worsened the doctors decided to scale back his medications to see if that would help. It didn't and, after several ER visits due to chest and stomach pain, David was sent for an esophagogastroduodenoscopy (EGD). That was when we first heard the word "gastroparesis". Within days David was admitted to the hospital in OKC with intractable vomiting and nausea, chest pain and severe stomach pain. It was here that the doctors discovered David's kidneys had also been affected. After some testing it was decided that David needed a kidney stent placed and he was taken for that procedure. He also had an NG tube and a catheter and so very many tests were conducted for tick borne illness, autoimmune disorders, and more. Nothing was identified that may have caused this illness and after two weeks David was feeling well enough to go home. But that didn't last long at all and within days he was back in the hospital. This time we chose a larger hospital that is affiliated with the Mayo Clinic. David is currently in Baptist Hospital in Oklahoma City. His diagnosis is severe gastroparesis, ileus, and kidney complications. There is some question of whether his gall bladder is also involved and there is widespread inflammation throughout his digestive system. He has recently developed a cough and doctors are watching that and will order testing of his lungs if the cough doesn't resolve shortly. The most common theory for this sudden onset of illness is that a virus is responsible. There are still some tick borne testing that needs to come back but so far everything for that has been negative. If this is due to a viral illness then there is a better possibility that David's gastroparesis will resolve or lessen in 1-2 years. If this is not viral then this disorder is usually lifelong.
He will remain at Baptist until we get him a consistent form of nutrition and hydration. It looks as if this will be some sort of tube feeding but that is all still being evaluated. We have no discharge date yet and we just continue to go day by day.
David has been accepted for evaluation and treatment at the Mayo Clinic in Rochester, MN. They are reviewing his records in order to place him in the most appropriate clinic and assign him the doctor that has the most knowledge of his condition. We expect to head to Rochester in November or December. We were told to plan to stay there 1-2 weeks but could be longer depending on what needs are identified. Our hope is to come home and receive his care at Baptist Hospital.
Thank you all for your phone calls and texts and for checking in with us to see how David is doing. We appreciate your thoughts and prayers and he definitely feels the love! We have so many friends cooking us meals, sending flowers, dropping off restaurant gift cards so the kiddos don't have to eat cereal all the time (LOL), and so many offers of help. I'm not sure we'll ever be able to repay or even properly thank all the people who have helped us so much. A big shout out must go to our Christ the King family, Bishop McGuinness family and the Irish Pom Squad!! We will continue to update this page as we get more information. I look forward to posting pictures of the Mayo Clinic and the beautiful surroundings as well as sharing our experience at such a renowned healthcare facility.