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Dec 4, 2017 Latest post:
Apr 24, 2018
Welcome to David’s CaringBridge site. We plan to use his CaringBridge site to keep our family and friends updated on David’s treatment and progress. We would like to thank everyone for your kind words of encouragement and prayers.
David has been struggling with health issues for the past year. On Monday November 20, 2017, he had another echocardiogram which revealed a possible blood clot and three dysfunctional heart valves. He was admitted to North Memorial for additional testing and observation. We were told that David would possibly need a pacemaker or defibrillator, but the doctors were still uncertain as to why his heart was failing and why his valves were not working properly. On Wednesday (12/2/17), David had an MRI which revealed the culprit of his heart issues, and he was diagnosed with Amyloid of the heart (Amyloidosis), which is a rare and incurable disease (Amyloids are abnormal proteins in the bone marrow and when released, attack your organs and tissues). In David’s case, the disease is attacking his heart. David’s issues actually began in the fall of 2016 after he had carpal tunnel surgery on both wrists. The incision on his left wrist had difficulty healing due to an infection and had to be cleaned and reopened and stitched three times before it completely healed. That was followed by a series of difficulties with a cold virus and bronchitis. In April of 2017 David had a mild heart attack, followed by pneumonia, issues with fluid on his lungs and then another mild heart attack on August 1, 2017. Since his last heart attack, David has been struggling with retaining fluid, severe pain in both legs and difficulty breathing. He has undergone various tests and procedures, including having the fluid drained from his lungs. On the 13th of November, David was put on bed rest due to congestive heart failure and underwent additional testing. On Monday November 20th, David had another cardio echogram/ultrasound. At that time, he was suffering from severe leg pain and swelling, difficulty breathing and had gained approximately 35 pounds in one week due to water retention. The cardio echogram/ultrasound revealed a possible blood clot in one of his valves. David was immediately admitted to North Memorial Hospital where he underwent more testing including an MRI which revealed the final diagnosis of Amyloid of the Heart. While we were stunned and devastated by this diagnosis, we are relieved to finally have answers. Due to the rarity of this disease, David’s cardiologist has referred him to the Mayo Clinic in Rochester. While we do know that there is no cure for Amyloidosis, the disease can be treated with Chemotherapy and blood stem cell transplant, in the hopes of leading to remission. David’s cardiologist has been working with a doctor at the Mayo Clinic arranging appointments for additional testing and treatment options. We received a call from the Mayo Clinic this afternoon and now have our first appointment schedule for this Monday. We will check in at 7:00am. Monday will consist of a full day of testing and Tuesday we will see Dr. Lin to go over Monday’s test results, followed by additional testing/procedures (depending on Monday’s tests results). I was told that we would have some kind of treatment plan before we leave the Mayo Clinic.