David L. Johnson | CaringBridge

David L. Johnson

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

I'll try to keep things up to date and short. David has been diagnosed with Myelodysplastic Syndrome (MDS) also known as Pre Leukemia. It is one step before full blown Leukemia. In his bone marrow there are immature red blood cells that are supposed to mature and go out to the bloodstream to carry our oxygen. His are not doing this. He also has low platelets. So if he gets cut he can bleed excessively.

He will be admitted to North Memorial in Robbinsdale, MN on Atrium 6 on December 15, 2016 for 1 month to receive 2 different chemo medications. This will essentially kill off the offenders in his bone marrow and his immune system will go down. If you decide to visit please use discretion if you yourself are not feeling well or a family member. Stay home and get better before you decide to visit.

The next step he will be admitted to the U of MN for another month of chemo (a little lighter version) and radiation. Then he will be matched for bone marrow replacement. Thank You to all who have volunteered to be a donor. First they look to blood siblings then cord blood or volunteers.

Prognosis is 50-60% to fairly good. Bone marrow replacement will be the only chance to cure this. Please keep checking in, I'll do my best to update along with my other duties and responsibilities.

Love to you all,


Dawn



12/23/16  Friday


Hi Everyone!
Just a little update on David. He has been admitted for a week and done a full round of chemo. Today has been the worst day to date. During the night he spiked a temp of 101.1 that increased to 101.4 in the afternoon. He's on 3 different antibiotics and they took chest xray and blood cultures to find the infection.  I spoke with him this evening and he seems a little improved but still hot.  All the staff at North Memorial Robbinsdale have been excellent.  So far he has held onto his hair. We shall see what happens.  Keep up those prayers!


MERRY CHRISTMAS EVERYONE!
 Dawn







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