Aug 23, 2021 Latest post:
Nov 24, 2022
On July 30, 2021, I lost my balance while making lunch, fell, and fractured my right humerus. We went to the med center for an x-ray and were told about an “incidental” finding of a nodule in my right lung. Further tests showed other masses and nodules in my lungs, lymph nodes, and bones. I have been diagnosed with stage IV Spindle Cell Sarcoma, a fast-growing (if untreated), rare form of cancer. We began chemotherapy treatments in September, 2021, but after 9 weeks, they were found to be ineffective. I had radiation in December, 2021 for spots on my spine and in February, 2022, I began a clinical trial for a new immunotherapy drug. That drug stopped working against my cancer in October, 2022 and in November I started a new clinical trial for a study drug know as BDB018. I am the 8th or 9th person in the world receiving this drug out of 40 who will participate in the study during Phase I.
We are so thankful for the outpouring of love and support we’ve received. We are especially thankful for your prayers.