Oct 21, 2017 Latest post:
May 20, 2018
Due to the progression of Cystic Fibrosis (CF) and lung function of around 15%, I have been listed for a double lung transplant. I am 62 years old, and it is very rare for someone to live this long with CF. I attribute my living beyond my "expiration date" to many years of running, cycling, hiking, and in general staying active. The transplant process is not a journey for just me, but for my wife Betti, my sister Cynthia as well as my parents and Betti's family. Betti and Cynthia are my primary caregivers who will be providing most of the support that I will need during the pre and post transplant period. I am currently listed for a transplant at both Emory University Hospital and Duke University Medical Hospital.