Anyone who has met our little Godson, Dariush (Dari), cannot deny how special he is! Dari has a peace and happiness about him that invokes joy and pulls on your heart strings. :)
Dari was diagnosed with Down Syndrome (Trisomy-21) on September 27th 2018, just 24 hours after being born. Unaware of this diagnosis during the healthy and uneventful pregnancy, Nima and Emma (Dari’s parents) were blindsided by this new condition and the attached health complications!
Dari spent the first several weeks of his life in the NICU, struggling to breathe. During this time he was further diagnosed with a small hole in his heart and received treatment for a transient form of Leukemia (TMD). Since then, Dari continues to astound us with his strength and resiliency as he happily grows day-by-day.
For some reason Down Syndrome children are more prone to leukemia. Children who had the transient form of leukemia (TMD) are closely watched for signs of it returning as Acute Myeloid Leukemia (AML). This doesn’t always happen. However, Dari was diagnosed with AML on July 17, 2019. He was admitted to Doernbecher's Children's Hospital that week and is still receiving care today.
If you look up AML on the internet, you will likely find information that describes a grim prognosis. Nima and Emma would like to encourage you to not seek information about childhood AML online, as Trisomy-21 (T-21) patients are found to have a different experience and outcome with this type of cancer. For reasons the doctors are not entirely sure about, AML is more treatable in T-21 children. Our prayers are that Dariush would be one of the many that get completely healed and go on to have a healthy life.
More than anything, we are asking for your prayers. Nima and/or Emma will be at the hospital with Dari 24/7 for the next half a year of treatment. This has already taken a great toll on their life as a new little family. At this time both parents struggle to continue to work full time while trading places by Dari’s side.
In addition to building a community of support on CaringBridge, we are also asking for financial assistance. More information about the Duncan's financial needs will be connected to their GoFundMe site, which you can access by clicking here: https://www.gofundme.com/f/dariushduncan?utm_source=customer&utm_medium=copy_link&utm_campaign=p_cp+share-sheet.
Please be aware that the "Tribute" icon on this site is for donations to help with the maintenance of the CaringBridge website and not for the Duncans. Be sure you understand that to donate specifically to the Duncans you will need to do so on Dariush’s GoFundMe campaign page.
We hope you will choose to follow Dari on his journey as it continues to unfold. Thank you!