First post:
Oct 30, 2018 Latest post:
Apr 27, 2022
We started this journey 3 years ago when Daniel had a brain aneurysm rupture. That started a domino effect of catastrophic proportions. The first year he was in the hospital 244 out of 365 days and his other issues include strokes, seizures, coma, an 8 inch open wound on his lower back, 3 brain surgeries, a shunt being placed, an ileostomy, supapubic cath, GJ feeding tube and others I know I have forgotten. He is now at home but nothing looks like it did before. He is a functioning paraplegic; meaning he has feeling everywhere but he does not have the use of his legs. He is 100% bedbound. I had to leave my teaching job to become his full time caregiver. My mother took early retirement to be able to help me keep Daniel at home.
I wanted to start this Caring Bridge page so that as many people as possible could get updates on how Daniel is doing - but also so you all could leave him messages as well. I have been reading him all the text I have been getting already. So come back often and remember that we love you and everything you do no matter how big or how small is helping Daniel to return to us, it's helping me stay strong for him , and it's helping those around us continue to be our rocks as we fight this battle. We love you!!