Daniel PHILLIPS Daniel PHILLIPS

My son was born April 2nd 2018 I didn't know anything bout his heart condition. He was diagnosed with hypoplastic left heart syndrome (hlhs) at roughly 5 hours old. It was the worst news any new mom could imagine. I thought I was bringing a healthy baby boy into the world. He was life flighted at roughly 10 hours old to Norton's children's hospital where he would undergo his first open heart surgery at 3 days old. He had some complications after the Norwood that would keep him there 81 days after surgery.  He also got necrotizing enterocolitis N.E.C. resulting in an ileostomy which he had that for 7 months, that was closed November 12th.  He had his second heart surgery(Glenn) in September. We was inpatient for 16 days with that! He has had a rough start to life but I think God he is here and doing amazing! 
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