Danielle Knutson

First post: Jun 22, 2022 Latest post: Feb 3, 2024
Danielle was diagnosed with Triple Negative Breast Cancer in February 2021. She had a lumpectomy to remove it that March. Got some fertility treatment in between surgery and chemo to harvest eggs in case anything happened. Started Taxol Carboplatin chemotherapy shortly after that. It was 4 sessions once every three weeks. After chemo, she had laser radiation five times a week for 4-5 weeks.

No follow-ups from any doctors at Kaiser Permanente. We had to ask to have blood work done about 6 months after, everything looked good.

Early May 2022, Danielle had an off night sleeping. Intense night sweats, vomiting and a headache. While she’s had consistent night sweats for decades that night she’d soaked through her clothes and bed-sheets. We contacted her doctor who said to get some blood work done but if she feels better in a week then it should be ok. This is was unacceptable so we pressed to have a CT scan. CT showed concerning lesions in her lungs and lymph nodes so they biopsied the biggest lump in her lung. Turns out the triple negative breast cancer metastasized. Doctors were concerned about her bone and brain so a bone scan and brain MRI were done. Bone Scan came back clean. Brain scan turned out a couple 2mm lumps. Had a lumbar puncture to test if the brain lumps were metastases or blood vessel issue. Even though the spinal fluid came back clean, the doctors think it's a false negative so she will be starting a course of full brain radiation. 10 sessions over 2 weeks. There is apparently a small tumor in her nose as well, so we're getting a follow-up meeting about it.

We tried to get a second opinions. Many people have recommended other excellent clinics but we've run into a bit of a wall. From what it sounds like, most clinics follow a national guideline for first round of treatments and any clinical trial or whatever, come after the first round. We're still hoping to speak with any professional in an advisory context just to make sure we're doing everything we can. At this point, the care and the precision of communication that Kaiser Permanente is offering is criminally poor.

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