Feb 18, 2021 Latest post:
Feb 23, 2021
Welcome family, friends and prayer warriors. By finding your way here, you’ve joined us in supporting and loving on Crystal as she battles stage 3 breast cancer, dx’d in December of 2020. Crystal is currently in treatment, and reading and writing are so fatiguing, she’s asked me, sister Sheryl, to help her to keep connected to everyone she loves. She is remaining so positive, like the rockstar she is!
I came out prior to Crystal’s chemo treatments to help her get “ready” for what was to come. I wanted to be here from the beginning, which was a challenge during Covid. But with lots of sequestering and testing, I’ve been able to help establish Crystal’s “care routines” to set her up for success through treatment.
I will do everything in my power to advocate for her throughout treatment and after. I will post updates, share your comments with her and reply back when possible.
Let’s back up in “Crystal’s Cancer Chronicle”. Crystal has been monitoring her breast health, and pursuing all avenues that might give an early indication of cancer her entire life. Our Dad died of cancer when she was about 7 years old. This prompted her to devote much of her philanthropic life to efforts to one day eradicate cancer.
Unfortunately, in her own case, her diligent efforts were thwarted by a missed diagnosis 18 months prior.
While the dates and details of her story are below, the big picture is that there was a misfiling of her breast MRI diagnosis results back in June 2019 by her PCP. They were filed under a different woman’s test results. Because of this, she was told that there was nothing significant or important seen on her MRI. Then, after many requests that the portal be updated, it finally was on October 2019. A link to the words, “ breast MRI” finally appeared in the portal. However the link led to another woman’s cholesterol test results. 91 years old, Lorraine Chandler. In spite of repeated requests, her breast MRI had yet to appear in her portal.
What we now know is that had Crystal’s PCP informed her of the breast lump in June 2019, when she was first notified by the MRI radiologist that Crystal needed to have a sonogram, before it had doubled in size and spread into her lymph nodes, she would not now be requiring eight rounds of the most deadly chemotherapy cocktail treatment, many rounds of radiation, the hormone therapy for the rest of her life, the 12 rounds of physical therapy after surgery which had to remove 21 lymph nodes from her armpit area as well as the the lymphedema treatments for the arm swelling she will struggle with for the rest of her life, etc. etc.
This has been a devastating journey and a horrible emotional strain to think of all the ‘if only’s’. But Crystal is remaining positive and is focused on her healing and the task at hand, which is to move forward and become cancer free!
There is a super scientific explanation of the diagnosis below and pictures and posts with more info.