Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Courtney's transplant journey started 3 years ago when we learned she was starting to get varies in her esophagus and needed to be banded once a month at Phoenix Children's Hospital. Since she was turning 18 we decided to transfer her care to Mayo Clinic in Scottsdale. She went through a Liver Transplant Evaluation and it was determined that she needed a new liver. At that time her MELD score (determines where you are on the UNOS transplant list-scores for livers range from 9-40, with 40 being the highest and most urgent need) was a 12. We quickly learned that our insurance company would not pay for the transplant until she reached a score of 15 or higher. For the next year and a half her score ranged from a 12-14 but never reached the coveted 15. Since January 30, 2017 she has been admitted to Mayo Hospital with Spontaneous Bacterial Peritonitis (an infection of the ascites fluid in her abdominal cavity), 3 GI bleeds, the ICU with a failing liver, 2 bacterial infections in her blood, 4 veins around her liver that have completely clotted off. She is now on the Liver Transplant List at Mayo Clinic with a MELD score of 30. Since January her conditioned has continued to worsen.