Colton James Mahoney

First post: May 3, 2017 Latest post: Apr 16, 2020
Colton was born on October 25, 2006 with Aortic Stenosis and later developed Mitral Stenosis, both undetected in the womb. His condition required him to have one of three surgeries at the age of three weeks. He had three successful open-heart surgeries before the age of four, the Norwood, the Glenn, and the Fontan. I used a different site to update family and friends during the first four years of Colton's life and they have since shut down that website (CarePages). ( Colton's heart is unique in that the left chambers of his heart at birth were fully developed and functional, but the valves were not. To learn more about the series of surgeries Colton had as an infant and toddler, I recommend this page:
Colton's aortic valve functionality continued to deteriorate as he grew which in late 2016, forced us to consider options for his future heart health and overall well-being. Long story short, in early 2017 after sending his case to Boston to Dr. Del Nido and his team, we received recommendations from the Boston team and his KC cardiology team to have a complex bi-ventricular repair (we'll call it Bi-V to make it easy). The Bi-V surgery essentially would undo his first three surgeries restoring his heart from a single ventricle to bi-ventricle functionality. Before Dr. Del Nido could perform the Bi-V, he needed to do a repair to Colton's aortic valve. The Aortic valve repair was completed in July 2017, the Bi-V was completed in May 2018, and in September 2019 after a cardiac cath check-up in Boston, we found out Colton needs another valve repaired. So, we continue this heart journey and are grateful for all your support. 

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