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Dec 19, 2016
Colin was a happy healthy baby boy until the beginning of October. At that time, he began vomiting after eating and/or nursing...not every day. Not even every other day. But gradually it began to get worse. We blamed his reflux and thought that it was a flare up. At the end of the month, Colin had a very difficult night in which he was vomiting every 15 minutes for over an hour. Chris and I took Colin to the emergency room where he was admitted for dehydration. He bounced back quickly and they said that his reflux combined with a virus were to blame. During that hospitalization, they noticed that his liver enzymes were elevated....likely due to a few rounds of steroids that he had been on. We went home and Colin was doing great for a couple of days. Then the vomiting began again. We moved up his GI appointment and had some lab work done. When labs came back a few days later, they noticed that his labs were elevated. We went back a few more times for labs and ended the week with an admission to Egleston for more work up. They initially thought that Colin had a metabolic disease where he wasn't able to metabolize different sugars or proteins. We took him off breastmilk and limited his diet and went home a few days later on soy formula. Well, our opinionated little boy did not like that one bit. He began refusing the formula and soon became dehydrated. Three days after discharge, we were on our way back to the hospital. Once we got to the hospital, we realized that this might be a longer stay than we had initially thought. Colin's labs were worse than upon his last discharge. After about a week in the hospital, Colin's condition slowly became worse. He officially went into liver failure. He was listed for a liver transplant on December 5th.
Chris and I are heartbroken, but remain positive and optimistic that we will bring our boy home with a new liver. Please continue to pray for Colin. Our little bear needs all the prayers he can get. We are hoping for a Christmas miracle.