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Apr 27, 2016 Latest post:
Dec 15, 2018
Colin is 4 and was diagnosed with a brain tumor on March 17, 2016. We only noticed the tumor thanks to a truly diligent pediatrician. Towards the end of February 2016, Colin began vomiting often and having problems keeping his balance. The general consensus was that he only had a stomach bug. But then his mother, Christina, noticed that his pupils were dilating differently. Our doctor managed to pull some strings to get him to an MRI. That means we've caught the tumor early, but there's still a long haul ahead of us. He had his biopsy on March 23 , 2016, and we learned on March 30 that his tumor - which lies directly in the brain stem - is a rare, "embryonic" tumor. He began his first round of chemotherapy on April 2 of that year and received a total of nine rounds in three-week increments during 2016, along with proton radiation therapy. The tumor responded well and he switched to a regimen of oral chemo for the first half of 2017 designed to make sure any stray bits of the tumor missed with the initial therapy didn't get a chance to regroup. That ended in June 2017. He's begun an experimental drug in September 2017 - one actually designed to fight epilepsy - that might make any recurrence of a tumor unlikely. Mostly, we focus on the fact that he seems to be doing well and try to ignore the fact that, despite all the care he's received, doctors were never able to remove all the tumor material. The hope is that it's been rendered dead by all the medicine. The fear is that it wasn't. We just push through and get regular MRIs and hope for the best. What you need to know about Colin: He's got a stubborn streak a mile wide, would be willing to engage in light larceny if it meant more time to watch Fireman Sam and has now begun eating the bread part of his sandwiches, but would still prefer to just have a slice of cheese. From Aldi Nord, mind you, none of this Aldi Sued nonsense, OK? - Niels