Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Cole is a smart, creative, athletic, funny, energetic, caring, kind boy. He is a wonderful son, brother, and friend. He loves all things sports, but especially baseball, basketball, and skateboarding. On October 11, 2020, Cole started to experience difficulty with his speech. He started a "tic" that presents as handshaking. Later that day he had a full-blown panic attack. His speech difficulties and shaking have remained and present themselves primarily when he is anxious, which is most of the time. His brain seems to be stuck in fight or flight. After a 5 day stay at a local children's hospital, he was diagnosed by his team of neurologists, psychologists, and hospitalists (pediatricians) with Functional Neurological Disorder (
http://neurosymptoms.org/?fbclid=IwAR1yDBi0TcqPUQVw2t7nTrx2lsAgYBohI7z75jgM9BmyU_t41ZDGSv91FCU). He has since been diagnosed with Autoimmune Encephalitis of the Basal Ganglia.
https://www.ohsu.edu/brain-institute/autoimmune-encephalitis He had been diagnosed with FND and a Tic Disorder. AE replaces both diagnoses. Please pray with us for our boy. We are thankful you are on this journey with us.
Find Cole's GoFundMe here:
https://www.gofundme.com/f/coles-health-journey?fbclid=IwAR1wMaWOn7TLUIdxzSivi-5S5nAAIBV1L-EisuXks4EdHmo3IygY_5k7Bhw