Oct 29, 2017 Latest post:
Oct 29, 2017
In July 2006, during a repeat ultrasound, a large tumor was found in Cole's heart. After additional tests, lots of stress and tears, the doctors determined that Cole would be born with Tuberous Sclerosis Complex (TSC). TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. There are presently no cures and there is no way to predict how severely or mildly an individual may be affected by TSC.
Cole was born September 4, 2006, with multiple tumors in two chambers of his heart and tubors and lesions on his brain and skin. He had weak lungs and developed a few different infections so he had to stay in the hospital for about a month.
Originally, the doctors were concerned that the large heart tumor was blocking blood flow and thought it would need to be removed, but luckily things seemed to improve and surgery wasn’t needed. To this day the heart tumors are still there, but not causing any issues.
As an infant Cole developed infantile spasms and seizures.