Jul 12, 2022 Latest post:
Aug 11, 2022
In order to make sure everyone has the same information, we have started a Caring. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
In late May we learned the immunotherapy I was on was not working. While it did not put me in remission, it DID allow us to travel to Disney over Spring Break as a family. It was, quite simply, the most amazing vacation I have ever had and for that I will be forever grateful.
Once my 9ncologist told us the news, he followed it up with he had already made a call to VCU to their immunotherapy/cellular transplant team. We met with them in early June. They immediately started me on the process of determining what( and if I )was qualified for.
It was decided I would be a candidate for CAR-T Therapy Transplant. Last Thursday, we went to VCU and they collected red my T cells. They are currently in a lab being re-engineered into Super T-Cells. On August 8, we will go back and I will be admitted to VCU for at least a month. After 5 days of hard chemo, the Super T Cells will be transplanted back into me and then the real battle starts.
Next week, I have 2 days of "bridging chemo" to keep my lymphoma stalled till Aug 8.
While there are risks, but without risks there are no rewards. And this treatment gives me a 50% chance at total remission. Without it, I had weeks to months left. I haven't come this far to quit now, so we fight.
The "we" is my entire village, but more specifically Laurel and Ashleigh. One of the reason this site was started was to take some of the pressure of keeping people up to date. In the weeks to come they will bear the brunt of my care.
We have been so loved and supported through this. We have felt the power of prayer and ask that you please continue to pray with purpose. Our village is wide reaching , and we know there is strength in numbers!