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Oct 4, 2018 Latest post:
Dec 1, 2018
Welcome and thank you for your support!
Well to make a long story much shorter, I've had health issues since the age of four, though, I wasn't OFFICIALLY diagnosed until the age of 17. I suffer from a genetic condition called Ehlers Danlose Syndrome also called hEDS, as I have the hypermobile type. EDS is a connective tissue disorder that can affect every organ or joint in the body. Ehlers Danlose can cause other comorbidities, ( two or more chronic conditions), I also suffer from Dysautonomia and Lymphedema (I will go into detail of each condition in my journal entry). Through the years my joint pain or pain overall has worsened. Like many EDS patients, we have 'loose' joint's which causes frequent dislocations and subluxations (partial dislocation), and because of this I am in need of new doctors who are inclined and knowledgeable about my illness. I am trying my best to advocate for my illness while taking care of my body. All my updates can be found here and thank you again for joining me on my fight for wellness!