While on vacation in Disney World in January 2019, Charlotte started exhibiting symptoms of jaundice. We took her straight to our pediatrician from the airport on Thursday, January 17 and they sent us straight to Texas Children’s Hospital. On January 23, after 6 days in and out of the hospital for what was thought to be viral hepatitis, Charlotte was diagnosed with Acute T-Lymphoblastic Leukemia. On January 31, that diagnosis changed to Gamma Delta T-Cell Acute Lymphoblastic Leukemia, an incredibly rare and aggressive form of T-Cell ALL that’s hardly ever seen in children.
We will fight this. She will fight this. This will only be a part of Charlotte’s story; a small chapter in the long story we can’t wait to watch unfold. It’s ugly and terrible and not what we would have chosen, but we have placed our hope and trust in the Lord and we know that her complete healing will be the bigger part of what we hope is a short chapter in her long and beautiful life story.
We found out that Charlotte had reached remission on April 25, 2019. This also happened to be the 3rd birthday of her perfectly matched (10/10) bone marrow transplant donor: her little brother, Jack. Her bone marrow transplant and new birthday occurred on July 12, 2019. She's now living a full, happy life with a perfectly working immune system. We give all glory and praise to our heavenly Father for His grace over Charlotte's life.
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