Sep 24, 2021 Latest post:
Feb 11, 2022
Welcome to Charlie's CaringBridge website. We are using it to keep family and friends updated in a central place.
On September 21st (Charlie's 16th birthday) we learned he had a sack of fluid around his heart. They drained about a liter during surgery and inserted a drain tube into his pericardium to continue drainage post surgery. We have learned that this leaked liquid (called chyle -pronounced kyle) is from the lymphatic system. The lymphatic system is part of your immune system and helps protect your body against foreign invaders. Unfortunately we do not know what is causing this. The Cardiac Team at Maine Med is in close contact with Children's Hospital of Philadelphia (CHOP) who are the world leaders in lymphatic system studies. At some point, we will be heading to Philly.
We welcome your comments. To see all posts, select the journal link on the main menu. We hope that there will not be too many more posts and have learned to take one day at a time. We appreciate your prayers, support and words of hope and encouragement. Charlie, Sam, Kim & Chris
Please do not donate unless you want to support CaringBridge. Donations do not directly benefit Charlie.