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12/18/2016 Latest post:
Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.
Our family life has forever changed. In September Charles was diagnosed with ALS. It was a difficult time in September going through the testing and now the continued battle begins. We are settling into our “new normal”. We are learning a lot about ALS, the changes it causes and how we can adapt those changes. We are grateful for your kind thoughts and concern.
We do not know the level of the progression of the disease, but it appears to be pretty aggressive. The outward signs you may notice are his arms and hands give him the most fatigue and weakness.
We hope this site will be useful with updates. We thank you in advance for all of the support and care we have been given. Your messages make us feel so blessed and loved!