#Unbreakable

Cecilie Nelson Cecilie’s Kidney Korner

First post: May 26, 2022




*Please share🙏🏽*
#AKidneyforCecilie
#Unbreakable 

Hello!😃🙌🏽 
As I’ve been on the Kidney Transplant registry since December 2019…And on PD Dialysis since February 2021, I figured it’s now time to kick this thing into high gear! I need a kidney! Though I’m doing really well on dialysis, transplantation is the goal.  And I am humbly asking for your help. 


So…How it Started.  Chronic Kidney Disease, or CKD as it’s called, since 2003.


Living in Chicago at the time, a routine checkup with my primary care doc garnered a referral to the nephrologist with an abnormal amount of protein in my urine and a cholesterol level of 321. Just a couple of tell-tale signs...


Fortunately, my diagnosis was achieved early...And, until about 2017, with faith, the support of family, the right combination of meds, and care from some of the most astute nephrology specialists, I had learned to live well with the disease.


However, it steadily progressed. Initially diagnosed at Stage II-III, my FSGS CKD declined to Stage IV w/ a GFR (kidney function) of 16. In December 2019, I was evaluated by UC San Diego Center for Kidney Transplantation and placed inactive on the donor list. Almost like clockwork, in December of 2020, with a GFR of only seven, my status was changed to Stage V - End Stage Renal Disease (ESRD), and plans were made for me to begin PD Dialysis, and I am now Active on the National Kidney Registry.


How It’s Going.


Honestly, this is the best possible position to be in! 😃 As a candidate for TRANSPLANT, WITH YOUR HELP, pursuing a match through LIVING KIDNEY DONATION I could undergo a timely transplant which would help to prevent both the prolonged need for dialysis and increased risk for more health problems. Also, Living Donors don’t have to be related. WILLING DONORS - close friends and/or acquaintances, male or female - just need to have normal kidney function, be blood type (I’m O+) & immunologically compatible, and be in overall good health.😃


These are the sites where you may learn more about Living Donation, as well as how to initiate the compatibility assessment.  The first step is to provide the transplant center in La Jolla, California, with your health history so they may determine if you are a possible candidate. You may either complete the online health history questionnaire at www.UCSDLivingDonor.org; OR provide information by phone by calling 858.657.7729 (tel:858.657.7729) & asking for the living donor team.  If they determine you’re a candidate, then the living donor coordinator will follow up accordingly.


The National Kidney Foundation refers to it as the #BigAskBigGive ...I know what it is I’m asking people to consider - what I’m asking of all of you. 🙂 There isn’t really a “right” time...😏That you may be willing to lend support in any fashion—I am truly appreciative, and I post this with an incredible amount of gratitude for you ALL—my husband❤️, our family & friends; my collective UCSD CKD Clinic & Transplant Program healthcare professionals (who all are no doubt at their max capacities); my dear Sorors💞💚; my fellow Realtors, clients & colleagues; those I know, and particularly those I may never meet. I’m especially grateful because I know, in some instances, I have not even the slightest right to ask nor expect your consideration and, yet, some will still be moved to help. That’s the spirit of Service, a principle I promise I work at every day...Not just for my immediate situation, yet for the needs we as humans face right now and have been facing for too long that REQUIRE WE RALLY AROUND ONE ANOTHER!


Still, this is no small task, so if you determine you’re unable to consider living donation, or change your mind anytime throughout the process, I wholeheartedly understand & respect your decision. You can HELP BY SHARING MY NEED FOR A DONOR with your families and friends! It’s possible one of them, or someone they know, would want to help me or someone else on my behalf (the Paired Exchange Donor Program).


For now, add’l general info may be found at www.kidney.org (National Kidney Foundation), www.ExploreTransplant.org, and on IG at #chronickidneydisease and @nationalkidneyfoundation


At the risk of sounding disingenuous, I do truly love you ALL. Thank you for taking the time and...for caring even a little bit.🥰  More to come....Yet, if you want to reach out to me directly, please don’t hesitate!  I know there will be questions, so ask away!


Anyways😊...Thank you🙏🏽Love you🥰Always❣️😘
#CKDWarrior
#AKidneyforCecilie
#NationalKidneyFoundation
#ucsandiego




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My sister Kelli Jones posted the following on Facebook on my behalf February 2, 2021…For all your prayers, shares and love…I THANK YOU! (I love you, too, LO)… I hope you’ll join us in this fight - Be a Kidney Warrior and consider being a living kidney donor. Visit https://health.ucsd.edu/specialties/surgery/transplant/kidney-transplant/pages/living-kidney-donation.aspx
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Hi everyone, I don’t usually post on social media, but I just wanted to take a moment to talk about my amazing, constantly happy, extremely positive, and incredibly beautiful sister Cecilie. We share a lot of friends and family on Facebook so I’m sure many of you know that she has end-stage chronic kidney disease and now she needs a new kidney. She has been so strong through all of this even though she fears everything medical. Why this didn’t happen to me, the sister who’s a nurse and understands this stuff, God only knows, but maybe it’s so I can be right next to her (along with her wonderful husband and the rest of our family and friends) offering my support, care, and love.


I would give my sister one of my kidneys without a second of hesitation but I have lupus so they said they can’t use my kidneys (even though I want them to just try anyway - lol). Again, only God knows why we were given these two paths to travel on, but we will put our faith and trust in Him, and we know He will get her through this. I write today to ask everyone to say a prayer for Sister (as she is lovingly called). I also want to ask you to consider becoming a living organ donor. Cecilie has shared some of the information on Facebook about becoming a Living Kidney Donor but I wanted to share it as well...


The following are sites where you can learn more about Living Donation, as well as how to initiate the compatibility assessment.  The first step is to provide Cecilie’s transplant center in La Jolla, CA, with your health history so they may determine if you are a possible candidate. You may either complete the online health history questionnaire at www.UCSDlivingdonor.org; or you may provide information by phone by calling 858.657.7729 (tel:858.657.7729) (tel:858.657.7729 (tel:858.657.7729)) and asking for the living donor team.  If they determine you’re a candidate, then the living donor coordinator would follow up accordingly. Additional general information may be found at kidney.org (National Kidney Foundation), www.exploretransplant.org, and on IG at #chronickidneydisease and @nationalkidneyfoundation.


I know this is such a ‘big ask’, and this may not be the right choice for everyone but please consider sharing this post with your friends and colleagues. Your efforts may not benefit my sister, but you or someone you know may be able to make a difference in someone’s life with this extremely generous gift.


I can’t tell you how proud I am of my big sister. She has endured so much already. There are just no words to express how much I love her. Again, please send a prayer her way as she continues along this journey. Thank you so much for reading this.  Sincerely, Kelli 


I love you Sister! LO
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