Ceara Skye Hughes

First post: Jan 18, 2019 Latest post: Nov 16, 2020
As many of you may or may not know, Ceara has been dealing with health challenges for a while. After months of  misdiagnosis to misdiagnosis, Ceara finally was diagnosed with Ehlers Danlos Syndrome. EDS is an extremely rare genetic connective tissue disease that affects the collagen (or “glue”) in her body. Because collagen is everywhere - skin, joints, blood vessels, and organs - it has caused a whole host of issues.  This explains the "cocktail" of diseases Ceara has dealt with these past  months.

We appreciate each and every one of you who has reached out with kind words, cards, meals, etc. We truly are so blessed to have such great family and friends. We have decided to use this CaringBridge site to keep friends and family updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.  

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