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Catherine Roberts Shteynberg
Nov 4, 2016 Latest post:
Oct 17, 2018
Welcome to our CaringBridge website, which we are using it to keep family and friends updated in one place about my recent diagnosis.
On Tuesday, November 1, my intern found me in my office at the McClung Museum having a seizure. She acted quickly and got my co-worker Chris, who kept me safe and called the ambulance. At the University of Tennessee Hospital, they ran a bunch of tests on me and found out that I have a pretty large (4.3 x 3.4 x 3.7 cm) brain tumor on the periphery of my right anterior frontal lobe. Fortunately, it is in a good spot for excision, and there wasn't any swelling or bleeding around it. They think that it is possibly a ganglioglioma, oligodendroglioma, or a dysembryoplastic neuroepithelial tumor (DNET). We will know a lot more once they do an operation to both remove the tumor and biopsy it at that time.
People have come out of the woodwork to help us. Friends and family members have been contacting the best neurosurgeons across the country on our behalf. Currently, we are thinking that I might be at Mass General Hospital, but we'll know more by the end of today most likely, once the drs. there have a chance to look at my MRI. If not, we might end up at another hospital in Boston, or at Duke, or Cleveland Clinic.
If I do end up at MGH, I will probably go in for a consult next Thursday, November 10, and then would potentially have my operation on either Monday, November 14 or Wednesday, November 16. We are still unsure how long I would have to stay in Boston for recovery and for follow-up. I won't be able to drive or fly for quite some time after my surgery.
In general, I'm feeling positive about all of this, and so glad that a) I didn't have a seizure while I was driving Luca or someone else around b) lucky that I had a seizure and they found the brain tumor at all, as I had absolutely no symptoms beforehand and c) like this tumor is in a good spot for removal. This past year has been a hard year with some minor health issues that Luca has had, and in general, just adjusting to parenthood, but this is giving me a lot of perspective. I'm so lucky to have such AMAZING family and friends, and to have such a beautiful, joyful son.
As we move ahead, Garriy and my parents are really going to need everyone's support even more than me. We appreciate your support and words of hope and encouragement more than anything, but as we know more, we'll report back here, and as we know more about our schedule, we'll keep everyone up to date about how they might help since so many people have already offered.
We are going to beat this thing--anyone that knows me, knows that I have no patience for this kind of thing, and I have way too many things I need to get done here with my family and friends to let this get in my way. Thank you, thank you for everything that you do and will continue to do!