Join CaringBridge during this most important time of the year. Your support means that we can continue to provide free, secure websites all year long.
1/31/2016 Latest post:
Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.
Carson was 11 when she became incredible ill the first time, apparently we had a diagnosis fairly quick because some that have milder cases of her disease goes undiagnosed for years. As we all look back she had this such she was very young, she had lots of tummy aches as a child,always in the 10% growth chart, I remembered she weighted 32 lbs through three yearly Dr checkups when she was a toddler but she was tough and we just thought it was our Tom Boy Sawyer wanting out of school. She was our girl version of this character, Carson much rather be barefoot, outside playing in dirt, or dancing,,,, she's been dancing to her own majestic world all her life... If you read all her cards in her room now they almost all reference her dancing on the dance floor... she is a muse for many.... It's as if she knew and was created to carry this cross of a crippling disease to bring out the free in others.
Carson fights Crohns with grace and dignity, and I'm the polar opposite. I call out troops, shout it from the mountain top and pray someone rescues her, she has to remind me it is her diagnoises not mine, but I have to remind her its a family affair, which she knows more than anything, and as hidious as this disease is the strain she knows it puts on her world stopping she knows our world will too. Its ok, its our normal now and that's what families do, and we do it pretty darn well. Meghan puts her magic super girl cape on to run the household, be Mom to Parker, keep her Dad in line and continues her work and school. Parker just keeps on keeping on and probably is the incredible kid she is because of her families adversity. Mel stands strong on the home front doing what Dad's do, making a living, taking care of his family and checking in with his girls at home and away and I go into full fledged manic, I've tried to talk less, have more grace and dignity like Carson and hold it all inside, but I fail, after all I'm who I am , take me or leave me. I drive Carson nuts, put lots more anxiety on the kid than her disease probably ever has and sometimes I get carried away, ok truth I go crazed. When you see your daughter fighting a fight from a beast but you sit there and let her get the stuffing's beat out of her because it is her disease then you go comado in advocacy, now that I can do!
Really and honestly if we didn't have a strong faith and all our faithful friends and family we would go mad.... I have always said, we get to see the face of God by the best being brought out in each and everyone of you, our friends, neighbors, colleagues, family and friends of friends reaching out in love... after all #Love wins #God wins #we win