Late in 2019, I was diagnosed with Mpn ET, a rare blood cancer. I had a bone marrow to verify diagnosis. I quickly learned that not very many people have heard of this. Due to lack of others awareness of this cancer, I feel more isolated. Therefore, others,, including family may not understand the severity of my symptoms. And no one likes to hear a constant stream of complaints. My family is very supportive, but even with them,, i do not explain all my symptoms and problems. I find support on several MPN sites.. its amazing that EXACTLY what I'm feeling is validated through all these other people! I'm very grateful to have this opportunity seeing others go through what I am experiencing. The worst symptoms are EXTREME FATIGUE, bone pain and nausea. The symptoms take over your life! I have good days and bad days. The bad days make me feel utterly horrible and useless. I truly feel that I'm wasting my days. I want to be upbeat in talking to my kids and grandchildren. I want to be brave and positive. Some days, I just literally fake it...so my kids don't worry 🙂. I deeply appreciate the immense love and support I get from my husband and children!! Thank you for being here when I need you ❤ My family makes everything worthwhile! Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.
