Caleb Rice

First post: Apr 2, 2018 Latest post: May 18, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Caleb Rice is a 5 year old who was diagnosised with Systemic onset Juvenile Idiopathic Arthritis when he was 17 months old. This means it affects his joints but can also affect his organs. Over the last 4 years his disease has been managed with different medications  including daily oral medication, different injections, and IV infusions every 2 weeks. 

At his routine pediatric rheumatology appointment on March 12th they found his lungs are now affected. He has had a lung CT and bronchoscopy but will also be having an open lung biopsy because they are quite certain he has Interstitial Lung Disease. 

There are roughly 50 children in the country that have SJIA and lung disease which probably now includes Caleb. Because it is so rare there is very little research and not a clear way to treat both. His current treatment is to take prophylactic antibiotics. Research has shown that the mortality rate is decreased with the use of these antibiotics. Once we have official lung biopsy results we can better determine how to manage this disease. 

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Caleb’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register