Brooke Kotrla Baldwin

First post: Jun 4, 2017 Latest post: Jan 6, 2022
Welcome to my CaringBridge website. I am using it to keep family and friends updated in one place. 
Thank you for all the prayers and support I have received so far. #ExpectMiracles 

2017-Brooke had an awake craniotomy on June 8, 2017. She ended up spending 5 days in ICU due the difficulty of the surgery and recovery. She had 34 seizures in during surgery making removing the entire tumor too difficult.   

She was diagnosed with a grade 2 diffuse astrocytoma at that time . She had proton radiation for 6 weeks in August then went through a fertility preservation process and had an egg retrieval procedure. She then started a year long chemo regime on Temozolamide. She had 5 days on every month and 23 off for one year. She tolerated everything well that year and finished her last chemo in August 2018. 

Brooke was also continuing her school through Texas Tech online all during her treatment. She was able to start teaching dance part time and was staying active.

2019-In March of 2019, she met Tyler Baldwin and by December of that same year they were engaged.  

2020-In August of 2020, Brooke graduated from Texas Texas! All during this time she was monitored closely with regular MRI scans that were all stable.

2021- Brooke and Tyler were married in the most beautiful ceremony on April 30, 2021 at The Bell Tower in Houston, Texas! They moved to Austin and started a new life together. 

In June of 2021, Brooke went to her regular follow up appointment for her MRI scans and something had changed. There was a small enhancement in her scan that looked "worrisome" to her oncologist. He got her surgeon in to see her that same day to discuss some options. They tentatively planned a biopsy surgery for 2 weeks later pending some advanced MRI testing. Brooke had an ABTI (Advanced Brain Tumor Imaging), cognitive functioning testing, and a functional  MRI. After much testing, they agreed it was not worth the risk and that the spot could be scar tissue forming. The biopsy was cancelled and the next step was to do another ABTI in 60 days.

On August 11, Brooke had her ABTI. The enhanced spot had grown by 2.5X. Both her surgeon and the oncologist agreed that it was time for a biopsy.

On August 19, 2021, Brooke had her biopsy with Dr. Lang. She did very well and spent one night in ICU. The biopsy showed that the tumor had progressed to "at least a stage 3 IDH Mutant Astrocytoma." Her team of doctors are all in agreement that another awake craniotomy is the next step. They want to remove as much tumor as possible, as safely as possible before starting her on another radiation ad chemo protocol. 

Brooke had another awake craniotomy on September 16 at MD Anderson. She is currently home recovering and is beginning physical, occupational, and speech therapy. More details to come....

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