Brody Brill

First post: Jan 12, 2007 Latest post: May 14, 2022
Brody was born with Hypoplastic Left Heart Syndrome.  Basically, he has half a heart.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook. Also, check out the links to better understand Brody's condition.

During our 21 week ultrasound, we learned that Brody was diagnosed with a rare heart defect known as Hypoplastic Left Heart Syndrome. This means the left side of the heart did not fully develop. We were given three options, terminate the pregnancy, carry to term and seek no treatment, or surgery. We didn't take much time to consider the options. As far as we were concerned there really was only one, surgery. Brody will go through a series of three open heart surgeries within the first 2-3 years of his life.
Update: He has made it through all of them! What a crazy ride it has been. We thank everyone for all your thoughts and prayers!
Update May 2022: Brody has been diagnosed with PLE. We are currently trying to manage it with meds. If it can't be managed with meds, he will end up on the transplant list. We are hoping and praying the meds manage this for a really long time.